“You’re mother is dying.”

No.

No, she isn’t.

But that’s what she told me when I got a call from her this morning.

This is starting to become a common refrain, unfortunately.

My schedule for today included heading to my mother’s nice and early, so I could drive her to the city. She had an afternoon appointment for another eye injection *shudder* to try and stop the bleeding of her wet macular degeneration and maybe – just maybe – improve her vision in that eye.

I tried to get more information about what was going on, but just got repeats of her usual. Her breathing. She only got 2 hours of sleep, and it’s because of her pills (it’s not because of her pills). Her chest pains (acid reflux). Pain in general. Even her incontinence. She’s convinced she is dying.

On the one hand, I get it. I totally get it! She feels like crap, and the idea of driving 1 1/2 hours to an appointment that would take at least an hour, then another 1 1/2 hours drive back, would seem overwhelming.

She’s 93 years old with busted up knees.

Yeah, I get it.

On the other hand, she has no understanding of just how good she is doing. I mean, she’s really amazing. At this age, her sister was already in the nursing home, being shuttled around in a wheelchair, and falling deep into dementia for several years. There are people far younger than her that are doing far worse.

Plus, canceling and appointment like this at the last minute is a big deal. There is only one place that does these treatments, and if she wants to retain any vision in that eye (she did say she was noticing an improvement), she needs these treatments.

Her response was, what does it matter, if she’s going to die, anyway?

She tried to guilt me, saying that I didn’t believe her. I told her, it’s not that I don’t believe her, in how she feels. I’m trying to understand why she thinks she’s dying. Because, really, there is nothing new in her complaints. That’s what I keep trying to get to. What is happening that’s different, that’s convincing her she’s about to die any at any minute.

In the end, she said she wasn’t going to say anymore and was going to say good bye, then she hung up.

At which point, I messaged my brother and his wife to let them know the situation. They are so busy right now, it’s the last thing they need to deal with, but they needed to know.

In the end, I decided that I would go to my mother’s place, anyways, and talk to her in person. If she still refused to go, I would phone the clinic and cancel the appointment from her place.

I meant to leave early, but so many cats were following me to the car, I had to ask one of my daughters to very noisily feed them.

Yes, they’d already been fed.

Including sweet Gouda. What a lovely kitty he is!

It was Syndol that would not stop following me to the car. I kept moving him away, and he kept coming back. I finally had to carry him all the way to the house, where he finally noticed the kibble and went to eat.

So much for leaving early, but I was at least on the road at the time I was intending to be.

While I was driving, my phone started ringing. I couldn’t answer, of course, but I’d told my brother that I would be on the road, and I figured it might be home.

It was.

When he couldn’t reach my by phone, he sent a quick message. He’d phoned her, they had a good talk, and she will go. He called her in between meetings at work, so he had to be brief. By the time I parked and could check messages, my SIL added that my brother had finally told our mother that they were selling their place, just so I would be aware.

So when I got to my mother’s apartment, she was up and ready and waiting.

She then launched into giving me all sorts of instructions on what to do and where to find things when she died. I honestly think she expected to die during the drive in.

She did mention my brother’s call, but as she was giving me instructions, including about her finances, she brought up my brother, and how he has the farm, but he wants her money, too. I sold her, the only person that wants her money is our vandal, and reminded her of the legal steps my brother had taken to protect her from our vandal. She just scoffed, then said that my sister was the only one who didn’t care about my mother’s money.

Which is weird, but she does like to try and play us against each other.

I’d worked out a time when we had to be on the road by, to get to her appointment, and we ended up leaving almost 20 minutes earlier.

She did walk very slowly to the car, lots of panting and pausing. It was a struggle for her to get into the car, and then she sat there, panting.

She really did play it up.

Her struggle to get into the car was very genuine, though. If we were using the truck, I probably would have had to practically pick her up to help her in!

She made a comment about her breathing as I was getting in, but then pretty much stopped the act at that point.

As we were driving, she started telling me things like, she’d talked to some of her neighbours in her building, and one of them had the same thing she did (at least that’s how my mother understood it), she didn’t go anything, and it went away. Then my mother told me about a Jehovah’s Witness that used to come visit (how many decades ago was this???) who talked about losing vision until she prayed and God healed her, and her vision had been fine ever since. She also told me about how, years ago (how many years?) she remember she had black spots floating around in her vision. She never went to the doctor, never did anything different, and they went away.

All I could say, really, was that these are all different things. That’s great for them, but that has nothing to do with you’re specific situation.

Also, for someone who was complaining about getting only a couple of hours sleep, she was very talkative and alert. I suggested she could try napping during the drive, but she wanted to enjoy the scenery…

Anyhow.

She told me she’d gone to bed at around 11, woke at 2am and couldn’t get back to sleep, no matter what, and it was because of her pills. I told her, we know it’s not the pills. It could be anything. Even just busy brain or stress. Oh, but you don’t know what I’ve lived through…

???

Eventually, she brought up about my brother selling their property, and that they were selling it privately, not through an agency.

I’m not sure what reaction she expected from that.

I reminded her, I had told her, my brother is preparing for retirement.

She did bring up about him not selling the farm – the property we are on – and I told her, he can’t sell it. That was part of my father’s will.

She dropped that, too.

Overall, though, the conversation during the drive actually went pretty well. She kept commenting on the traffic. She still seems to think traffic should be like when she and my father lived in the city until the mid 60’s.

I’m glad we left as early as we did, though. It’s construction season.

If we’d left when I originally planned, we should have arrived about half an hour early. Leaving when we did, we should have arrived as much as 45 minutes early.

We got there 10 minutes before her appointment.

They took her in almost immediatley.

The next while spent getting her eye dilated while the tech tried to get images and video of it.

Normally, during these tests, they ask you to focus on a green X, or a picture of a house, or some such thing, in the middle of the device over the eye they are looking at.

With macular degeneration, that’s not possible. She can’t see the middle of anything.

So the tech instead set up a tiny green light on an adjustable arm in front of her left eye, and asked my mother to try and focus on that.

My mother kept getting distracted.

What do you mean a green light? It’s white?

There’s a dark spot in the middle.

The light isn’t on…

After a number of attempts to get video, I finally started to explain, they just needed her to look at that spot. It didn’t matter what the colour was, or anything else. It’s the location she needs to focus on.

I think she finally understood that, but by then, the tech was done!

She was then sent to a waiting room before the next stage, but the doctor requested one more image. He needed a specific location photographed, so he could compare with an image taken last time.

That, at least, was quick!

We do have good news.

The bleeding in her eye seems to have stopped. There is still a bit of blood in there, but mostly there is scar tissue right in the middle of her vision.

Then he asked her if she wanted to continue treatment!

She deferred making a decisions (which is her usual way), wanting him to make the decision for her. Which he couldn’t do, of course. He did say he would recommend still getting the treatments since, if they are stopped now, the bleeding might resume. I finally said we should at least do a treatment today, and we decide about further treatment later.

Meanwhile, my mother launched into how she’d had these black spots floating in her eyes, (I told her, this is not the same thing, and the doctor repeated that) and they went away on their own, etc. The doctor told her, this is not going to go away on its own.

She dropped the subject.

So they went ahead with the treatment, with a light freezing of the eye, adding antiobiotic drops, and finally the main freezing. That one needed 7 minutes, and my mother was asked to hold a tissue over her eye and just relax for a while.

As we were waiting for the freezing, the doctor and the tech – plus a third person that was in training – started looking at other files. They spoke quietly, but I could hear bits and pieces, and could see some of the images they were looking at.

All I can say is…

My mother is doing really great! She is there at a time when she can actually get treated, and the damage is relatively mild. At one point, I could hear them lamenting that there was absolutely nothing they could do to help one particular patient. She had simply waited too long to get checked. As quiet as they spoke, I could still hear the pain in their voices.

The doctor had a timer going, so they were soon back working on my mother. She got her injection, and was reminded that she will have redness, which is normal, but if there’s any pain, she is to come back right away.

As for the next treatments, he told her she no longer needs to come back in 4 weeks, but maybe 4 or 5 weeks. I checked my calendar and saw that my husband is rebooked for his CT Scan in 5 weeks, so it would have to be 4 weeks for my mother.

The doctor was very understanding about the long drive in, and that the next treatment would be winter driving. There is simply no other clinic like this that’s closer. One is planned for the town we are closest to, but that’s all it is at this point – plans.

Once he was done, that was it. We just needed to book the next appointment, then go.

By that point, we were both hungry – my mother hadn’t even eaten breakfast! – but neither of us were up to trying to find a place to eat in the city. We talked about where to go in her town and she wasn’t enthusiastic about her choices. Then I suggested we stop at the gas station where I could pick up her favourite fried chicken and wedges.

She was quite excited over that idea!

So we had a good drive home – traffic was a lot lighter, and we were no longer in any construction zones.

I picked up the food and got her home. She was pretty famished by then! I got enough that she could have another meal out of it later.

After that, there were a few things she needed help with. One was a letter from the government that she didn’t understand. Another was helping her write out a check to pay for her ambulance bill, from her trip to the ER a month or two ago. It didn’t come with a return envelope, though – they expect people to pay via etransfer, credit or debit. She didn’t have a suitable envelope, so I ended up taking that home to get ready to mail, which I will do tomorrow.

As we were talking, she mentioned that she needed her laundry done. She hasn’t been up to doing it herself, and it’s been piling up. She said she hoped to “hire” my sister to do it – but my sister and her husband are coming home from out of province tomorrow, and tomorrow is my mother’s laundry day on the building’s schedule.

I also noticed, her fridge was looking empty.

But she never asked me for help. I even asked if she needed shopping, but she said the only thing she needed was milk.

Okay…

That was it!

I left soon after. I’ve got her check ready to mail and have my own parcel to pick up at the post office.

I really, really need to get more work done outside. Tomorrow was going to be my first day in quite a long time where I didn’t need to go anywhere, and could get back to it.

*sigh*

I’ve just arranged to go over to my mother’s tomorrow, to do her laundry and, if she puts a list together for me, her grocery shopping, too.

The long range forecast has changed, again. The snow I was seeing in the beginning of November seems to have gone away for the most part. We’ll even have some warmish days. If the weather holds, I should still be able to get things done.

We shall see.

Meanwhile, we’ve had no word from the garage about the truck, which means no one has had a chance to look at it yet.

I also had a chance to talk to my brother this evening, and got to hear the rest of how his call with her went. He had so little time to make the call, he basically just told her, go to the appointment, and that I was already on my way to get her. When he mentioned that yes, they are selling their property, she launched into her usual lecture about how the value of land only ever goes up, etc. He just let it slide and had to tell her, he needed to get back to work.

When I talked to him this evening, it was after he’d had a very long day at work (he starts at 5am), and was at the property, packing up shed contents. They’ll be coming out here this weekend with the stuff they are keeping, but they are also sending stuff to auction.

It’s a huge job, that’s for sure!

So we will be at least seeing my brother and their friend on the weekend, with trailer loads. I honestly don’t know where he’s going to be putting things at this point! Most of the sheds here can’t be used anymore.

I’m sure he’s got a plan, though. He always does!

So that’s been my day today.

How was yours? 😁😁

The Re-Farmer

2 thoughts on ““You’re mother is dying.”

  1. It sounds like such a tough day, balancing your mom’s health needs with her strong emotions. Your dedication really shows, from ensuring she made it to her appointment to comforting her with favorite foods. You’re doing an incredible job, even if it’s often behind the scenes.

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